Podcast 53 | transcript
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Hello and thank you for listening to our podcast, Autism Goes to College. I’m Abigail Pay and I’m currently a freshman at Kent State University in Ohio. I am
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also 20 years old and I’m currently in the non-deree career and community studies program at Kent State. I chose Kent State because this program has a
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great fit for me. Um, it’s pretty close to my family in Pennsylvania. I’m also interested in graphic arts and marketing. Um, I’ve also, as of now,
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started a small business and is supporting me with classes in independent living skills. And I’m also getting confidence for whatever is next
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for me. I’m glad to be here and thanks for having me. All right. Um, welcome to the podcast,
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Autism Goes to College. I’m happy to bring you this conversation with Abigail. So, um I know you were looking
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at multiple schools and you landed on um Kent State. Uh could you share some
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decisions about or some insights into what schools you looked at and how you made your decision?
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Yeah, so um some of the schools that I happened to look at were um Villanova, I looked at St. Joseph’s. I looked at Kent
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State. I looked at um another one out in Philly. And ultimately it came down to um Kent State was closer to home, closer
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to family. Um it wasn’t a 9 and a half hour drive. I was not Yeah, I was I was not going to have a 5 hour drive that that Nope. No thank you.
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Um so yeah, ultimately it came down to I wanted to stick closer to home. I wanted to stick closer to family. Um especially cuz I have loved ones who are a little bit older who kind of rely on a little
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bit more help. So, in case anything were to happen, I would be like a 30-minute drive away. Um, I don’t currently drive,
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so my parents do pick me up and drive me back and forth. But, um, yeah, but ultimately how it came down to that was it had the program I was looking for. It
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had the people I was looking for. It had a lot to do on the weekends. Um, it had a lot to do during the week. Um, I had plenty of classes, you know, like there
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were plenty of food options around. So ultimately that was also a decision of going to Kenton City because there was plenty of things to do as compared to oh
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I also looked at one college um in New York City the um oh what the heck why can’t I think of the name um it’ll come
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to me but there I looked at one in New York and that was also too far of a drive. So um with the decision in mind I then went back kind of retraced my steps
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and kind of eliminated one by one I came down to Kent State and knew that’s the one uh that’s where I want to be and I
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have now been at Kent State for um almost oh and has it been since August.
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So yeah I’ve been in here since August and I’m currently my second semester.
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Congratulations. So, it sounds like it was a combination of being close to family and also just really enjoying the program. Um,
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yeah, it really was. And it’s a very interesting program to say the least.
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Yeah. Um, I can’t wait to hear more about it. So, it sounds like uh I hear you got some scholarship money. Can you
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talk to us about how you found scholarships and how that worked? Yeah.
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So, um I was very very very blessed to know some people in my hometown um in Pittsburgh, Pennsylvania and through the
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Democratic Committee um down in my home state and they were very very generous.
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So, um they offered me I forget I think it was like $1,000 scholarship there and
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then I applied through uh O uh OVR. I got one from them and then I also got one from um the organization of autism
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research um through a good friend of mine and he happened to love my interview and loved what I had to say
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and um offered me the scholarship and I very generously accepted it. Um and that
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one I think was also about $1,000 or maybe a little bit more. U I I honestly think it was like $1,000 the same way.
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So, um yeah, that also helped to pay for a very very large amount of my college tuition um to be able to afford to go to
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Kent State. So, that was um obviously very much um it helped in a lot of aspects. It helped to not only pay for
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college tuition, but it paid for my classes, it also paid for um some of my food options and whatnot. So, like it covered a large portion of mostly my
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tuition. Um, I am currently waiting on a couple others, but I won’t find out till May if I get them. So, um, as of now,
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those are the the two two or three scholarships that I’ve gotten.
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Well, that’s wonderful. Good luck with your uh upcoming scholarships for May.
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Um, so you’re living on campus in a dorm at Kent State. Um, and you have a single, but the dorm isn’t dedicated to
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uh your program. What’s it been like moving into the dorms and moving out of your uh family home?
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Um, it was very stressful. I’m not going to lie. Moving out of my family home was my whole family was a wreck saying
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goodbye to me because they had been used to having me for about a good solid 19 20 years of my life. Um, so leaving home
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was definitely very scary. The nerve-wracking feeling of like, oh no,
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what now? But moving into the dorms once I got situated um I was in love with it and um you know like I just it was very
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much um a joy and I have a really great RA.
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Um she is literally the one of my best friends. Um so I love her dearly. She she just oh she’s such a delight to have
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around. Um yeah but it is not dedicated to my group. You are absolutely correct on that. Um, it is also with uh regular
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college students. So, it’s actually nice to be able to talk and meet and hang out with some non non autism program people
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um and get to experience a little bit of normaly when it comes to dorms. So, I get to see a lot of different faces and meet a lot of different faces and get to
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spend some time with them. So, that’s also really fun. Um, yeah, it it’s honestly been really quiet. Um, you know, first semester was a little loud.
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I’m not going to lie.
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But second semester has definitely been more quiet. Um, which has been kind of a blessing in disguise because I haven’t
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had to deal with noise problems at night. Um, as much as semester 1. And unfortunately, semester 1, we had a lot of fire evacuations,
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uh, at the butt dark of like the evening, like the it would be like 11:30 at night and the fire alarms are going off. We’re like,
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and we have to go outside in the cold. This should be fun.
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So, that was really unfortunate, but um that’s finally kind of gotten under control and we haven’t had the fire alarms go off in forever. So,
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hallelujah. Um that’s great.
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That’s been really Yeah. It’s been nice to sleep. So,
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yeah. And it I’m so glad that you have a good RA. Do you know if your RAS get any training on autism or neurodiversity?
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Yes, they do. So, um, at the I believe it’s like midsummer before we come in in August, um, they get basically a little
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like side program aside from the regular students, they get like a little side program and they get trained on autism,
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uh, what to look out for, you know, um,
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issues that might come up, which unfortunately we did have a lot of that. um between some of my group members.
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There’s a lot of drama, but um that’s actually subsided now and a lot of us get along finally. Um good.
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Yeah. But um they do get trained on you know what to look out for. Um if there’s mood swings, if there’s you know fights
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between anybody like you know or how to deescalate a situation before it escalates support better understanding and resolve conflicts.
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Yeah, that makes Yeah, exactly. So, um I mean it’s not perfect and it’s, you know, no no program is going to be that
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way, but she I mean she really does do a good job. And I mean our floor is pretty good with each other. So like we our
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floor hasn’t really had any massive problems. I mean, there have been other kids from my program who have come come up and shaken things up a little bit,
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but like my RA has been like the highlight so far of living in a college dorm because
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you don’t always get of everyone’s different. Every RA is different. Like a lot of people will say like, “Oh, I didn’t have the greatest RA. Oh, I didn’t really have the best like,
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you know, experience.” But I’ve been very fortunate and very lucky to have a very good support around me. So that’s been a huge blessing to be able to feel comfortable and like I fit in.
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Um, and our college is a very diverse college. So like they’re very accepting of people with disabilities. Everyone is very kind. They include us in
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activities. We get to go to basketball games. We get to go to volleyball games.
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We get to go to gymnastics meets. Like you name it. Any activity that there is,
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we all go. So um, you know, it’s it’s it’s been a great experience so far.
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Yeah, that’s really great. Speaking of,
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you know, the other students and the students in your program, is it a large program or there are a lot of autistic students in it?
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There are about, I think right now there’s about 10 to 11 of us. We actually had one a couple students from
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the program in general who have left the college and have left the program just cuz it wasn’t at that right time for them where they just didn’t they didn’t
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think it was best for them. So, they decided to leave. But as of now, I do think that there is at least 10 or 11 of us and they’re still good group of people. So Mhm.
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And they all range they all range from different ages to different unique situations. So it’s it’s a but it is a good group. So
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yeah. Do you have um things that you do to connect with the students in the program beyond classes?
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Uh yeah. So we also at the beginning of the year we all had dinner together, we all had lunch together, we all had breakfast together. Um, we all really do hang out. We are a tight-knit family.
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So, um, some of us girls will hang out and do like girls day trip stuff and like, you know, we’ll hang out and laugh, watch movies, you know. Um, we’ll
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dance have a dance party. We’ll do Tik Tok videos. If you know what Tik Tok is,
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everybody knows what Tik Tok is. Um, I have a really bad addiction to that. Uh, it’s just it’s Tik Tok much fun, right?
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Yeah. I spend a lot of time on it, but um like a lot of us girls will just kind of hang out and you know do girl stuff.
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But we will hang out inside of class and outside of class together as a group sometimes, but at the end of the night we all are kind of exhausted from a long day. Our days start at 7:45 a.m.
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and go until about uh 5 to 5:15 at night. So, and we have like an hour or two break in between our
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classes. So, we’re pretty exhausted by the time 5:00 hits and we’re like, “It’s time for bed. Good night.” Like, and then we all kind of like go our separate
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ways and we all hang in our in our own decompress. Yeah.
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Speaking of the busy days, um, what classes are you taking and how do you pick out your classes?
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So, right now I’m taking one non autism program um, course and I’m taking intro to yoga, which is so relaxing. I I
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honestly love it. Um, I have a wonderful teacher. She’s amazing. I love her. Um,
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you know, I love my yoga teacher. I would spend every day in there if I could. Well, I guess I do spend every day in there. Every Tuesday, um, or
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every, no, every Wednesday, I’m sorry, every Wednesday I’ll be in there. But, um, yeah. So, I’m
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taking one regular KSU courses, which they call KSU courses because it’s a regular college ed class. Yeah. Ken State class.
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And then I’m taking um, you know, human relationships. I’m taking um what we
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call um like uh personal uh uh person planet centered planning.
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So PPC. Yeah. Person centered planning.
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Yeah. Yeah. PCP or P Yeah. PCP. Yeah.
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PCP. Yeah. Um I’m also taking um disability and the laws. So that’s also a really interesting class. I just
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started today. So that one just got started. Um so I haven’t really learned much there yet. I will um as time goes throughout the next couple of months,
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but um yeah, and I’m also taking a couple other disability related courses in the autism program in specific. So,
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um yeah, those are just some of the other courses that I take.
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That makes sense. And I know that you’re in a 4-year program, but there’s also a two-year option in the program. How did you choose between two and four years?
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Four years might feel like a big commitment to some people.
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So, how I chose that was I it kind of goes year by year. So, like I can decide to change it throughout the year. If I decide, hey, I want to stay in four
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years, great. If I want to change in two years, that’s also an option. And at the end of the semester, I can change it and say, hey, I want to do two years. Hey, I
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want to stay with the four years. So, as of now, I’m still doing the four-year.
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me and my mom have decided and my dad have decided to um take it just year by year and whenever we like if I find that
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at the end of the semester I’m like you know I really don’t want to be in the four year anymore I want to go to the two-year I have that option. So it’s it I it’s very flexible so I can fluctuate
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on what I want to do. So if I’m like hey I’m not going to get anything out of four years okay great I can switch over to two years or if I’m like hey I’m
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barely going to get anything out of like I want to keep going. Yeah, exactly. If I want to do that, I can say, “Hey, I really want to stay in the four-year and
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they’ll put me in the four-year.” So, as of now, I’ve not switched. I’m still in the four-year program as of now. Yeah. Do you like the four-year program?
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Um, yeah, I do for now. Um, I’m really happy where I’m at now. I say that kind of hesitantly because like every day I kind of think I switch my mind up a
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little bit of like I want to do this, I want to do that, I want like I kind of I go back and forth, but um yeah, it’s great to have options, but
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that can also be you know, how do you commit? Um yeah, it’s yeah, it’s definitely a lot to think about, but like for now I’m
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pretty happy in where I’m at. So that’s great. Um, and how would you
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compare high school to college? Like did you have an IEP in high school? And are you finding similar supports in college?
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Yes. So, um, I did have an IEP from I believe it was third grade, second or third grade all the way up to my senior year of high school.
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Um, unfortunately, high school was very, very challenging and a lot more strict. I’m sorry.
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high school is just like you don’t have an option to skip classes. Um no, there’s not much flexibility.
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Yeah. Like and like you’re you’re mandated to to take PE and whatnot, which we’re it’s the same way here.
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You’re mandated to take at least a year of um like kind of like PE. They don’t call it PE anymore. They call it like physical education. So PH for short.
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Yeah. um or physical or I guess PE is still what they call it, but they they say like you have to take a semester
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worth of that. So, I take yoga for my PE course. Yeah.
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Um cuz I was like, I’m not running. I’m not doing track. I’m not doing football.
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I was like, I I’ll do yoga. So, um we also had the option to do ballroom dancing, but the teacher is not very friendly from what I’ve heard in ballroom dancing. So,
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I was like, “We’re going to stick it safe and we’re going to do yoga.” Um,
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and I love it and I don’t regret that choice. I love yoga and the teacher’s awesome.
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Um, and it’s very relaxing. So, I’m very happy that I chose that.
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It sounds much more inclusive and calm than a high school gym class would be.
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Yes. Oh, yes. Um, and you get put in with regular like regular students for those classes. You don’t have like a,
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you know, special education room. you have you get to socialize with regular students at Kent State in whatever
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course you take. So that’s also been really nice to socialize with regular kids. Um and I mean everyone pretty much keeps to themselves. Like everyone’s
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really sweet. Everyone’s really nice here. Like there’s not been any instances of fights or bullying or like you know everybody here is so chill which is so nice.
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Yeah. And is that pretty different from high school? Like was there social fading and bullying in high school?
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Yes. Unfortunately, I went through a lot of physical and mental bullying.
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Um unfortunately I was yeah what they called the victim of um bullying. We believe it was related to my disability.
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We don’t know for sure. Um but you know it was I had things that hit the back of my head. I had things that hit the side
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of my head. Um I had a lot of kids who phys I had bruises. Um They were assaulting you. That’s awful.
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Yeah, it it was very nerve-wracking and it caused a lot of trauma and it caused a lot of like just really bad negative
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thoughts to get to my head. And I’m very lucky at that time that I had a very very close friend of mine who essentially saved my life. Thank you very much to my best friend by the way.
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That was I will forever hold you high for that. Um but you know, college is a lot different in a better way. there’s a
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little bit more there’s a little bit more freedom and it’s like you’re still expected to go to class but like you know if you have good
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grades you’re allowed to skip one or two courses um per week or like you know whatever class you decide you want to skip but you have to
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be the one to check your grade and be like hey I’m falling down gradewise I need to go to class or hey I’m on good
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standing I can afford to skip a class or two but I try really hard not to do that because I learned my lesson the hard way
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first semester. Um that was really tough. But you know it it everybody’s
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different. But um in terms of like social, yeah, social you get to interact a lot more with regular kids and kids here are a lot more mature than they are
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in high school. So that’s also really nice.
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Yeah. And speaking of the social life on campus, are you finding that you’re going to events and maybe like sports games or other things? How’s that?
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So, I actually have been to a couple really good basketball games. Um, and then I’ve been to a couple gymnastics meets and like open gymnastics. Um, like
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before real competition started, I went to like their preseason.
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So, I’ve gone to a lot of gymnastics and basketball. Um, those typically the gymnastics are more on the weekends and then basketball is during the week. So,
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like there’s one tonight, but um I chose to do this instead so that I get a little bit more flexibility. for spending the night with us.
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Yeah. Oh, yeah. No, I would not miss this. No way. Um but um you know there it’s a a little bit more flexibility as
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to what I want to do at night. So, you know, I typically eat dinner and then I go hang out with friends and then I come
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back and like um you know, I kind of chill out. But um you know, like I don’t we’re so unfortunately the hard thing is
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we’re not allowed to leave campus during the week. Mhm.
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Um if we want to, we have to ask our program supervisor if we’re allowed to.
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Um typically the answer is no. But I’m actually pretty glad that it’s that way.
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I’m actually not like Yeah. It’s good that there’s some structure.
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Yeah. But uh for me, I do also get to leave on weekends cuz I do a church event on Sundays and there’s a church right across the road from my college.
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And so I have permission on weekends,
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Saturdays, and Sundays to go off campus to go do those events. Um, and I’m also a very fortunate person. I’m very fortunate to be a part of two teams um,
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at that church. So, I keep myself pretty busy um, vocalwise and like schedule-wise. I’m
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very tight on time. I barely get to sleep on Sundays because I’m always somewhere. So, there’s that. Um, and I
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don’t regret that either. Best decision I ever made. Um, and I also have a great support team around that church, too.
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So, like I have a lot of very great supportive people who, you know,
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regardless if I have a disability or not, they’re very supportive. So,
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that’s wonderful. Yeah. I always enjoyed being busy and and having a lot to do when I was in college. And it sounds like you like that.
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Yeah. I I love I’m a very hands-on person. If I’m if I don’t have something to do, I will lose my mind. So,
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Okay. Um, and I hear that you’ve taken up karaoke or maybe that was a long-standing.
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Uh, so yes, you are. Yes. So I am currently doing karaoke. Um, at our college we have like this like little
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restaurant in like what we call our student center or I guess the union if you if that’s what other people call it.
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Um, we call it the Kent State University student center. in the bottom of our student center there’s like a little food restaurant and it has like a karaoke stand and whatnot and like
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there’s like a stage so a lot of us will go during the week and do that with the regular ed like the regular students a lot of people show up for that so we
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love to sing and do fun activities um so there are that’s one of our probably my favorite activities that I’ve done um
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the other favorite that I’ve done is I went to a movie night at our pool which is like a 20 minuteish walk u it’s not bad um It’s pretty close. It’s just a
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little bit of a walk, but we watched uh Lilo and Stitch, the new version at the pool. That was my other favorite cuz we got to like sit in the pool and watch a movie.
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Yeah.
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Interesting. So, you could like float and watch. Yeah. Cool.
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Yeah. Um, and like what are you looking forward to uh as the semester progresses
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or next year? Um, next year I’m looking forward to rooming with two of my other best friends who are girlfriends. Um, so
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three of us girls are going to room together um in another building. Um,
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yeah. So, at the end of the year, I have the option to move out of my current dorm and room with someone or if I decide I want to stay in my room as a
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single, but I’m actually looking forward to having um, one of my friends is from the program I’m in and one of them is a regular student. So, us three girls get
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along really well and um we giggle and laugh just about every day. There’s not a day we’re not talking. So, we’re gonna room together. Yeah. And so, we’re gonna
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room together um next year all the way up until our senior year. So,
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23 minutes
Oh, wonderful. Um I’m glad that that’s working out and that you made some friends that will be roommates um I’m
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23 minutes, 8 seconds
still in touch with my roommates from college.
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23 minutes, 10 seconds
Yeah, it’s it’s they’re great girls and they’re very fun to be around. So, I I love them a lot.
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23 minutes, 17 seconds
Wonderful. Um, and you know,
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23 minutes, 20 seconds
particularly for students who are looking at similar non-deree programs,
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23 minutes, 24 seconds
do you have advice on how to succeed in college, how to how to make friends like that?
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23 minutes, 31 seconds
Yeah. So, honestly, branch out. Don’t be afraid to find what you love. Find things that will interest you. Um, talk
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23 minutes, 40 seconds
to people in your program. um try to make a couple friends outside of your program because you never know who you’re going to meet. Um that’s how I
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23 minutes, 47 seconds
found one of my best friends. Um was me and her just happened to like be on the same app for college and we started talking and we hit it off really well
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23 minutes, 56 seconds
and became friends from there on. Um and we found out we live in the same city which is actually very cool. Um actually
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24 minutes, 4 seconds
two my and my other girlfriend actually lives in Pittsburgh too. So all three of us live in the same city just in separate areas. So, but we’re both Yeah,
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24 minutes, 12 seconds
but we’re about we’re all about 40 minutes from each other, so which isn’t bad. So, not at all. But, you know, branch out, have fun,
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24 minutes, 20 seconds
relax. Um, you know, try to sleep. I learned that the hard way my first semester. I really struggled with sleep.
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24 minutes, 28 seconds
Um, I suffered from anxiety attacks as well. So, I was constantly calling my boyfriend and constantly had friends
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24 minutes, 36 seconds
around me to try to chill me out a little bit because I was so anxious for being away from home. So,
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24 minutes, 42 seconds
um that was definitely hard, but I my second semester I have gotten better about that and I’ve gotten better at sleeping. So, you know, don’t be afraid to take a melatonin or you know,
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24 minutes, 51 seconds
whatever might help you.
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24 minutes, 52 seconds
Um or listen to Yeah, exactly. But also rain apps or if you have like a quiet app on your phone like one that will play like calming
25:00
25 minutes
sounds that also help me. Um yeah definitely me too.
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25 minutes, 5 seconds
I’m also on a medication for separate things. So you know don’t stop taking your medication that’s prescribed by your doctor. Please don’t do that. I
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25 minutes, 14 seconds
learned that as well the hard way. Um don’t do that. It’s not smart at all.
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25 minutes, 21 seconds
Taking care of your health is really important.
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25 minutes, 24 seconds
Yeah. So, um, but yeah, just enjoy it while it lasts. Um, take in every moment that you can. Um, I’ve also been a part
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25 minutes, 33 seconds
of the theater group, so I’ve gone to see a lot of theater shows and I’m currently trying out for show. Um, I’m waiting to hear if I got in. I don’t
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25 minutes, 40 seconds
know. I was hoping to hear by end of this week, maybe next week. We’ll see. So, um, you know,
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25 minutes, 47 seconds
keep yourself busy as busy as possible because then the last time you had to be sad about missing home. Um, it’s just that I found that was the best way for me to keep my mind off of missing home was to keep myself busy. So,
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25 minutes, 59 seconds
yeah, take advantage of the opportunities. Um, and it certainly sounds like you have.
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26 minutes, 4 seconds
Yes. So take, like you said, take advantage of the opportunities, branch out, make friends, go to different activities on campus, whether that be
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26 minutes, 12 seconds
art gra uh art, art, crafts, arts and crafts or music or karaoke or basketball
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26 minutes, 19 seconds
or gymnastics. Find something you love and continue to go because you’re not going to regret that. So yeah,
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26 minutes, 27 seconds
absolutely.
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26 minutes, 29 seconds
Oh, yeah. And I’m glad that Ken State has been such a good fit for you and that you’re having so much fun and you
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26 minutes, 36 seconds
know it’s been great it sounds like so far.
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26 minutes, 40 seconds
Yeah, I I love it and there’s not a day that goes by that I don’t regret my decision of coming to Kent State. At first it was a little hard but um you
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26 minutes, 48 seconds
know it’s it’s a great school. The the surrounding area is really nice. Um there’s plenty to do downtown. We have a really cute downtown area. Um, and yeah,
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26 minutes, 58 seconds
it honestly it’s it’s awesome here. So, I love it. Home away from home. That’s great.
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27 minutes, 6 seconds
All right. Thank you so much for coming on our podcast and um hopefully your advice will be really helpful to other
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27 minutes, 13 seconds
students who are looking to uh consider a program like this one.
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27 minutes, 19 seconds
Yeah, there are so many programs that I know of. So, but yeah, I’m I’m grateful to be here and uh I’m glad that uh you
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27 minutes, 26 seconds
guys asked me to be here and I’m uh this was a lot of fun. So, thank you.
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27 minutes, 30 seconds
Yeah, I mean we’re so happy to have you and and your enthusiasm for your program just speaks for itself, you know, and I
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27 minutes, 37 seconds
think college is such a time of opportunity and you’re really taking advantage of everything that’s on offer.
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27 minutes, 44 seconds
Yeah. I mean, it’s a blast. So, thank you for having me. Well, I’m glad you’re having a blast.